Blog Posts & Updates /
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We were called with an opening for a sleep study for Gideon a month ago and received the results about 2 weeks ago. Everything looked great while he was sleeping. The experience however, was not Gideon's favorite As you can see, it wasn't just a few metrics being measured but EVERYTHING. Full EEG set up on his little head, leads on his body and a nose cannula. He hated every minute of it. They needed 6 hours of data and they seemed to get just enough. A little more about how

First off - apologies for the long stretch between updates. It has been a very.. busy but buckled down past couple of months. We have so much to share about our Mighty Warrior! Brace yourselves for a long post - I probably should have broken this up into multiples. Stay until the end and we hope you are blessed today! First off - his surgery in November went GREAT! The timing was absolutely perfect. We went up on a Tuesday, had surgery that afternoon, and were discharged arou

In December, just a week before Christmas, Gideon got a plug in his trach. This was so terrifying for all of us. Everyone was home, enjoying our typical Friday night when all of a sudden Gideon became unresponsive. He glazed over, drool coming out of his mouth and shook just a little bit. We almost thought he was having a seizure (he was not and that has been ruled out numerous times). Daniel and I have both been so used to the acute desaturations we experienced his first sev

I had started this update with some good news... and then by the end of the day the news had changed and it's even better now. We have been a little quiet because we're just trucking along with Gideon. He receives anywhere from 3-5 therapies a week, 2 of which are at a center every week (speech & feeding). We were actually "graduated" to a once a month checkin until his speech develops more with our speech therapist. He has met all of his goals which is amazing! We've been ab

Here's a fun story about Giddy that happened last week in feeding therapy. Our therapist has to do stretches and exercises and then we do...

Summer has flown by. In the best way ever. I feel like we really worked hard to make up for lost time from last year, despite the amount...

It is the eve of our next surgery for Gideon's cleft. February was his nose/lip reconstruction and tomorrow will be his palate. This will...

As I sat here this morning trying to accomplish so many things I decided to snap a photo. The overwhelm comes on strong more times than...

It's been one week since our impromptu sleep study. This was a no frills sleep trial - nothing additional monitoring other than a pulse...

This is the word God gave someone for Gideon. I had seen her several times at church but never really spoken to her. She came up to me a...

One of Gideon's diagnoses was multiple heart abnormalities. Those consisted of VSD, Double outlet right ventricle, possible atrial...

This past Sunday, one of my literal dreams came true. We worshipped as a family of 5. We did Gideon's vent break in the morning and were...

What a mix of - it's already been 6 weeks! And How has it only been 6 weeks? Gideon's little face is healing up nicely - the scar is...

Oh how I am so happy these days are upon us. Gideon is up to 2 hours of vent breaks a day. Yesterday we took full advantage of the warm...

It is so hard to believe we are already 8 days post surgery. Gideon has been handing everything so incredibly well. Our surgeon did such...

What a whirlwind these past 2.5 days have been. Gideon's surgery was a success - which we had no doubts. What I did not expect was the...

I am writing this to you as we are en route to where our surgery will be. Is traveling inconvenient? With all this extra gear, yes. But...

First off, the big thing - Gideon’s first surgery in a series of surgeries for his cleft is THIS week February 6. This is cosmetic, so...

Welcome to our journey. I realize that it is strange to start one, when already so much has happened, but really, the timing is just...